Back to top

Related Organizations/Websites

These websites, organizations and audio broadcasts offer a wealth of information about end-of-life care and palliative care, such as advance care planning, hospice, home care, long-term care and aging with dignity.

Massachusetts

National

  • National POLST Taskforce
  • Advance Directives and Advance Care Planning Report - from the Secretary of HHS to Congress.  The report focuses on: 1) the best ways to promote the use of advance directives and advance care planning among competent adults as a way to specify their wishes about end-of-life care; and 2) addressing the needs of persons with disabilities with respect to advance directives.
  • Aging with Dignity - This organization offers advice on making health care decisions and what you want your loved ones to know.
  • Caring Connections - This program of the National Hospice and Palliative Care Organization offers free, multilingual resources and information for people making end-of-life care decisions before a crisis.
  • Center for Practical Bioethics - This site offers help for patients and their families, health care professionals, policymakers and corporate leaders who are struggling with ethically complex issues in medicine and research.
  • The Conversation Project - This project (and website) is "dedicated to helping people talk about their wishes for end-of-life care" and includes a Starter Kit to help individuals have "the conversation."
  • ELNEC Core Training - Educational materials from the Hospice & Palliative Nurses Association, for nurses and members of interdisciplinary care teams (i.e., physicians, pharmacists, social workers, etc.) who want to increase their knowledge of end-of-life care and palliative care issues.
  • The EPEC Curriculum Training Modules - Educational materials (with CMEs) from the Northwestern University Feinberg School of Medicine, for physicians and other health professionals who are engaged in palliative care education and clinical practice.
  • The Schwartz Center for Compassionate Care National nonprofit organization dedicated to strengthening the relationship between patients and their healthcare providers.
  • PREPARE website - The PREPARE website is designed to help people and their loved ones prepare for medical decision making.

Articles and audio broadcasts